Living with aspergers

Our beautiful Lex

2010-04-29T10:05:00.000-07:00

I have decided to change this blog up a little because people don't understand what the family goes through living with a person with asperger's. You may know or not but we have a wonderful daughter who is going to be 8 here in a few days. She is a joy and puts up with alot from her little brother. They do go through there normal brother sister fights and they do get along good. She is such a good sister and understands Issac sometimes better than Joe and I do. Lex is very patient with him and tries to teach him it is so cute how she brings us report cards for him. I am learning that I have to have alone time with her and make sure she is handling everything good. For the most part she is but it tore me up when she said "mommy I am tired of getting hit all the time" I really didn't know what to say just that mommy and daddy are trying hard to get people to understand and help us. I completely understand how this can effect a family and why divorce is so high because of these situations. My family is a God loving family and I know for a fact without God in our lives this would have broken us apart but we are lucky and it makes a family stronger everyday gives us more of a desire to stay focused on God. I am great full my mom is there for us and on really hard days takes him and she just knows how to joke and be cool with him. Thanks Mom we love you!!

Our week

2010-04-22T06:47:00.000-07:00

Well this week has been one of the better ones in awhile. Today was the first day he got upset and didn't want to go to school. So this meant hitting, kicking, screeching which one day out of the week is good. No the less I had to stop and get a coffee. lol The most frustrating thing right now is helping him understand things have consequences. So daddy got his motorcycle going last night which made Issac's day and daddy went down the street to show it to Grandpa and when I turned around there was Issac riding down the rode on his bike. Thankfully we live in a modular park which is not like being on a street but it does get busy at times and I still have to treat it like a street for Issac. When I got him back home took his bike away he just couldn't understand why. Thankfully all I have to do is focus his attention on anything that has to do with automobiles and he forgets what was wrong. Issac has come along way and is learning alot better just really need to get this comprehension thing figured out. On the fun side he is learning to have pretend play and is pretend talking to daddy's friends on the phone. Which is so funny because he takes everything to heart and if you didn't know it you would really think someone was on the other end. We have a family vacation coming up after school gets out and Joe and I are nervous about it because Issac doesn't really handle being away from home for vary long to well so just keep us in your prayers that all four of us can enjoy it.

Days ahead

2010-04-11T04:23:00.001-07:00

Well it has been a long time since I have been on here. We have had alot of ups and downs. For me I am trying to understand my little guy. Its that time to start thinking about kindergarten. He is growing up so fast. When it was time for my daughter to start school there was no question she was ready. With Issac on the other hand he will be six this year and I am still really nervous. I know its not a good thing to keep him in preschool for a third year but why in the world is it so important to make a kindergarden go to school all day everyday. He is a very smart kid just waiting for someone to listen and help me to bring out all that he has stored up there. I think he gets fruastrated with himself to because he wants to tell us stuff and cant always express how he feels. So if you read this just pray for our family to have strength and understanding most all God's peace. Have a wonderful and blessed day!!

Looking for comments to my question below

2009-03-15T15:32:00.000-07:00

If you hear your child make fun of another kid what would you say to them? (exp: kids with disabilities, poor kids ect.) I ask this question for a reason and I will post why I asked this question in a few day.

Thanks for your comments
Charity

MRI update

2009-03-11T19:11:00.000-07:00

Hi to all my followers. I am giving you an update on our day from Issac's MRI. Well we ended up going down the night before to stay with my brother who lives in the Akron area since the appt was so early. We were up and out the door at 6:30a.m. which was a good thing. Boy do I not like that kinda traffic. We ended up getting off the wrong turn thanks to our mapquest directions. We finally made it to the hospital with a few minutes to spare. So we took the elevator to the first floor where the office was not knowing that you had to take the catwalk across first then go down, but we were really lucky since a worker let us walk in with her because the office was right there and she couldn't see making us go back to the 3rd floor to come across the catwalk. So thanks much too her and God Bless her!! Went into the doc office signed in and they took us back pretty quick. The nurses were the best. You could just see they loved there job. The Nurses were really nervous when it was time to put the IV in Issacs arm and I told them not to worry he always does good. Well he did wonderful and watched them the whole time and didn't even shed a tear. (This is the part of Issac not feeling pain right away). They took me and Issac back to MRI room, put him to sleep(don't want to see that again) and did the MRI took about 1 hour. Then we had an appt to see the doc right after for the results. The results came back fine(thank God). Only found one little spot not worried about it but will recheck in 6months. So I asked him why Issac was the way he is and his anwser was must be behavioral problem. So my quest continues to help him learn and just to be patient with him.

It's been a while

2009-02-12T17:34:00.000-08:00

Hello to all my followers it has been a few weeks since I made a post. Just wanted to put an update. I have been very busy the kids have been sick and life its self has been a little crazy. I am realizing that it is ok for things to be crazy as long as you don't let it drag you down. So Issac has been doing pretty well the last few weeks he has his off days but that is expected. I am really learning to just ask God for peace and what to do to help Issac from day to day. These last few days that have been really nice outside what a blessing! Issac like every other kid loves the outside. Unlike other kids Issac doesn't run around to get rid of energy he just rides his little four wheeler or bike around or most times he just wants to sit on it and take in the world around him. He acts like a little man on his four wheeler he can back it up in any spot you ask him. He is also showing aside of him I hope sticks with him when he gets older. Issac loves to sweep he does it about 5-10 times a day a little here and there, he also does not like to be messy. So for a four year old that is nice. I am realizing God has a wonderful plan for Issac and there are reasons for this stage in his life. Weather it be for him or Us as his parents. Issac is a funny, funny kid and knows how to make a person laugh hard. So for now that is it and just for reference I think my next post is going to be on Sensory Processing Disorder which is what I think is what Issac struggles with.

Thanks God Bless

Charity

Gotta love the Counselor

2009-01-17T10:45:00.000-08:00

Thanks to God, he keeps me calm for the most part and lets me laugh things off. This week was a trying week. Issac and I went around a couple times a day. Issacs counselor came to the house a few days ago. She comes once a month. So I tried the lovely things the counselor told us too do when Issac starts to get mad. She wants him to smell the flowers and blow the bubbles and this will calm him down. Well as you can imagine trying to get a four year old to smell the flowers and blow the bubbles when his is having a melt down didn't work. For one it just made him madder and all I could do was laugh because she swears up and down this is going to work. When Issac is having a tough time he just wants to be left alone were it is quiet. So for now we will put the smelling flowers and blowing bubbles on hold. I also had to put the counselor in time out to role play for Issac. It was funny becaue putting her in time out was much easier. I wish Issac would just say " I don't want to be in timeout" that would be easy. Instead she doesn't understand that he hits, bangs his head and throws anything around him. Last she wants us to explain to him that if he is good we will have a calender and for every hour he is good he will get a sticker. Which is fine but I am supposed to explain to him he gets something special at the end of the day. Issac is not an out of control kid. His needs are just different. If the neuroligist didn't request the counselor I would stop. Ending Note When your counselor wants you to role play and act things out just laugh after she leaves because thats all you can do. She just doesn't understand that Issac is not comprehending what she is talking about and you think she would realize that when he answers all her questions with "my daddy's got a semi."

Time to vent

2009-01-14T05:57:00.000-08:00

Ok so today I am just going to vent because that is what you have to do sometimes. So Issac is alittle overwhelming this week. He is in a mood that he is either asking the same thing over and over again or he is having a melt down everytime you turn around which is fruastrating. I feel like he just does not understand what I am telling him so he just asks til I ignore him or finally get him to understand what he is asking is not possible at this time. So when it comes to the melt down I have to figure out whether or not he is just overwhelmed himself or throwing a fit. That is a fun time. I do put him in time out and he just goes into this rage of fit where he will throw everything and anything or hit whoever. Now I am sure someone reading this is thinking I don't know how to handle my child. So STOP right there and just stop reading because i don't want to hear it. You probably have never had this problem before and don't understand. I have a daughter who in my opinion is the best child so I do know how to take care of my children. And boy do i really wish it was nice outside so he could go out there and play. So days like this I ask God why are we going through this and to keeps me strong and to give me the peace and understanding to help Issac through these days as well as to help me through these days. I love Issac with all my heart and know that he is a special kid and God has a plan for him. That is what keeps me strong. So please don't give up on your child if the are struggling because they don't know why anymore than you don't know why. Ending Note if you see a child out and about that is upset don't just asume they are a spoiled little brat because that is not always the case. God Bless

Sugar or no Sugar

2009-01-10T13:10:00.000-08:00

I am writing today about the effects of sugar and what it will do to some kids. Well just for a little update my son loves his sugar. But he can't have it. Not because I don't want him to but because it makes him mean, out of controll like someone going through withdrawl and he just is a differnt kid. So the question is do I like to keep it away from him? Well I think we all know the answer to that but for the record NO I don't like to tell him he can't have it. On the other hand if you see how it makes him react then you would understand why I keep it away from him. Alot of people don't know how sugar makes a kid react. So ask yourself some questions like does my son get hyper or mean. Does he crave it all the time sometimes it may seem like they are going through withdrawl like a drug. Well in a sense to some kids sugar is a drug. I have found out with my son we have to keep him away from it completely. And it gets so aggravating when I tell someone he can't have that birthday cake and ice cream or can't have the special treats because all you hear is one little piece won't hurt him. Well that little piece will hurt him. And it is hard to tell him no when his sister is sitting there eating it. In his little mind he doesn't understand why he is being told no and everyone else is being told yes. I have found things that has very little sugar or no sugar in it that makes him feel like he is getting a special treat. Ending Note if your child is sensitive to sugar then it is your responsibilty to make your child feel normal by making sure he has special treat when around other people or just don't go around them. I have had to stay away from alot just for my son and I wouldn't give that up for anything in the world. If people don't understand then to me they really just don't care.

Mommy Knows Best

2009-01-07T09:17:00.000-08:00

Are you a mother and ever wondered if something was different about your child? Don't feel alone because that is how I felt. But you always have someone telling you that you are over protective or kids advance at different stages which is all true. I believe a mother knows her child better than anyone and if you have that feeling then go with your gut feeling. They may just be a little behind and catch up in the end but you don't know that and why take the chance and wait til it is to late. My son is behind and has been since the age of 2 but I got him in a Help Me Grow program and it has done wonders for him. He is still getting the help he needs and may need it throughout his whole schooling but you know what I don't care anymore because I would rather him get help than not want to admit that he made need it. People that do not know what you are going through either because you choose not to let everyone know like me only my best friend and my mother know what we deal with on a day to day basis do not have any reason to make comments about your child. Ending note is Mommy Knows Best so pick a couple of people you can trust and don't think your crazy and let them be the one you talk to when you get overwhelmed.

The Beginning

2009-01-06T17:33:00.000-08:00

No parent ever wants to admit that there may be something wrong with their child. I still struggle with it everytime I think about it. That is why I decided to do this blog. I am hoping to get help, give help, and give insight to other people that don't understand a special child. I thought for the longest time that he was just being stubborn and I didn't know how to control my own child. When all he needed was someone to understand him. So I will continue to post my days with him and how we handle them. Hopefully we will get him the right diagnose that will help him. Until then he continues to see a Neurologist, Counselor and test done and Most importantly prayer for daily. Ending on this note remember it is you who your child looks up to and they just want you to standup for them and protect them.